Friday, July 9, 2010

Help Needed for a great cause

My gorgeous niece passed away 2 years ago aged 7 months, to a godawful disease called SMA, the biggest genetic killer of children under 2 years old. There is no cure, no treatment, no funding for research because it isn't financially viable enough for pharmaceutical companies to back.

My 2 week old nephew was just diagnosed with the same thing. 90% of kids diagnosed with Type 1 SMA, as he has, will pass away before they reach 2 years old.

Pepsi has a grant available to fund research that will be given to the cause with the most support by 31 July for $250k. One vote is allowed per day. Please click and help them succeed. If you could pass this on to anyone and everyone to boost numbers and support it would be hugely appreciated.

This is a major hit and hope situation. Much thanks.


  1. Keep trying to do this through facebook but it says connection issue detected. Has anyone else had this problem? Thank you for bringing awareness to this issue and so sorry for this terrible loss in your family.

  2. Ugh, not sure what is happening there. You can also log in with email though if it keeps going on. Thanks heaps.